Chordoma Foundation


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For Healthcare Professionals

The physicians, nurses and other healthcare providers who treat chordoma patients play a major role in determining patient outcomes, and are critical to our efforts to advance chordoma research. This page contains information to help healthcare professionals most effectively treat chordoma, provide valuable resources to their patients, and participate in efforts to advance chordoma research.

We encourage you to register so that we can provide you with the latest information about treatment advances, clinical trials, upcoming research workshops, and resources for your patients.

Outline: Treatment  |  Research  |  Resources for your patients

Treatment


The Understanding Chordoma and Treatment pages on our website provide a good staring point for those unfamiliar with chordoma. Additionally, the following pages on our website contain information relevant for the treatment of chordoma:

Authoritative treatment references

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Research


Chordoma Foundation Biobank

Currently, scarcity of chordoma biospecimens is thwarting progress in the field. To solve this problem, the Chordoma Foundation operates an IRB-approved biobanking protocol for the collection of tumor tissue, blood and clinical information from chordoma patients across the US. Storage and distribution is performed by the Human Tissue Resource Network at The Ohio State University under contract with the Chordoma Foundation. This collection serves as a resource to the entire research community, making tissue available to qualified investigators for peer reviewed research projects.

CF Biobank BrochureHealthcare professionals can help by informing chordoma patients about the opportunity to participate in the biobank. We will gladly send tri-fold brochures about the biobank that you can provide to your chordoma patients or display in your clinic. Contact us to request brochures, or download a copy here.

Patients can enroll in the biobank by calling 877-230-0164 or emailing biobank@chordoma.org. Our biobank team will consent the patient to participate in the biobank and will work with your institution to procure excess tumor from surgery. We will provide collection kits and any other supplies needed to obtain frozen tissue; handle shipping and pickup logistics; and reimburse hospitals for procurement costs up to $500 per case.

Research Workshops

Our International Chordoma Research Workshops bring together a multidisciplinary group of leading chordoma physicians and scientists from around the world to share the latest discoveries about chordoma, discuss new treatment approaches, and to forge collaborations with colleagues from different disciplines and institutions. Learn more »

Researcher Directory

Our Researcher Directory lists over 150 physicians and scientists actively involved in chordoma, sortable by specialty, institution, or locale. Use this directory to find collaborators or colleagues to discuss difficult cases.

Relevant Professional Societies

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Resources for your Patients


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