Chordoma Foundation


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Improving life for those affected by chordoma

If you or someone you care about has been diagnosed with chordoma, we are here to help with answers to your questions, important steps to consider, and ways to get support.

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Leading the search for a cure

We proactively and strategically initiate, manage and fund research across the globe to accelerate the development of effective treatments and ultimately a cure for chordoma.

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What you should know

Chordoma Foundation Updates

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Featured champion

Jeff Schilling

You never know what tomorrow is going to bring. There could be a cure for chordoma. There could be a drug for chordoma. There could be anything for chordoma that gives you a different life outlook than what they’re saying today.

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Featured researcher

Dr. Chetan Bettegowda

Most doctors-in-training never come across chordoma during medical school or residency, but Dr. Chetan Bettegowda had an uncommon opportunity to learn about this uncommon cancer.

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Chordoma Biobank

Contribute to Our BioBank

Patient tissue is critical for research needed to find a cure. Our Biobank enables patients to help advance research by donating excess tissue. Learn how to contribute »